Press Release – Los Angeles C.A., February 27, 2019 – Rare Genomics Institute (RG) today announced a partnership with Dante Labs, an Italy and US-based diagnostic laboratory. RG is an international non-profit that gives rare disease patients access to state-of-the-art genomics sequencing technology, connections to scientists and researchers and philanthropic opportunities. Dante Labs is a genetic testing company specialized on whole genome sequencing and rare diseases. Through this partnership, Dante Labs has agreed to provide pro-bono Whole Genome Sequencing to select patients from Rare Genomics. Their test called, Whole Genome Sequencing (Full DNA Analysis), analyzes 100% of the DNA and provides personalized reports based on the patient’s medical history and symptoms.
“Shortening the diagnostic odyssey is our core mission, and Dante Labs is helping our patients who have nowhere else to go,” said Romina Ortiz, COO of the Rare Genomics Institute.
As the utility of next generation sequencing has become well known, it is important to help patients across the globe determine what test they may benefit from. However, access to genetic testing varies significantly. In some cases testing is not covered by insurance, and in some countries the test may not be readily available. Rare Genomics and Dante Labs will focus their efforts on both child and adult rare disease patients around the world who cannot afford the test.
“It is rewarding to collaborate with the Rare Genomics Institute in support of rare disease patients,” said Dante Labs CEO Andrea Riposati.
For more information about the Patient Advocacy Initiative and to apply, please visit https://www.raregenomics.org/rg-patient-application-form
About Rare Genomics Institute
Rare Genomics is an international 501(c) 3 non-profit founded in 2011 to fill the health care gap for undiagnosed rare disease patients and supporting research in rare diseases. Rare Genomics (RG) works alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. RG helps rare disease patients find a diagnosis, treatment, and pathway to a cure by individualized access, coordination and execution of genetic sequencing and research services with RG and its affiliates. RG also supports rare disease advocacy by fostering an online community of rare disease patients, and supporting rare disease research through a yearly grant competition. We hope that these efforts slowly push science and care forward to meet the needs of the patients affected by rare diseases.
For further information on Rare Genomics, please visit http://www.raregenomics.org.
About Dante Labs
Dante Labs is an international genetic testing and data analysis company, specialized on whole genome sequencing and rare diseases. With offices in L’Aquila, Italy and New York, Dante Labs serves individuals and doctors in 84 different countries, providing personalized reports based on people’s symptoms and medical history. Dante Labs also supports rare disease advocacy by subsidizing genetic testing for people in need and by working directly with rare disease advocacy groups worldwide.
For further information on Dante Labs, please visit: https://www.dantelabs.com
Are you part of the good crowd? Join GoodCrowd.school, school for changemakers today.
