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Devin D. Thorpe

Devin Thorpe

Children’s Brain Tumor Foundation Announces Inaugural Slate Of President’s Advisory Council

Press Release – Children’s Brain Tumor Foundation (CBTF), headquartered in New York City, today announced the inaugural slate of President’s Advisory Council (PAC) members. The Council members represent a diversity of backgrounds from business, medicine, politics, finance and nonprofits, among others. Each member brings extraordinary experience and expertise to the table. All provide counsel to Dr. Gary D. Jaworski, CBTF’s new president, as he advances the mission and reach of the foundation around the country and globally.

PAC inaugural members are Stuart Essig, Chairman of the Board of IntegraLifeSciences Holdings Corporation, a leading global manufacturer of Codman neurosurgical care products, and orthopedics and tissue technologies; Dr. Heidi Horsley, Executive Director for the Open to Hope Foundation, adjunct professor at Columbia University, and board member of The Compassionate Friends; Ginny Shulman, board member, Jenna’s Rainbow Foundation, a nonprofit that supports special projects aimed toward critically ill children and their families; Joe Sestak, retired Rear Admiral in the United States Navy and former congressman from Pennsylvania (D); and Susan L. Weiner, Ph.D., a national advocate for children with brain tumors who was CBTF’s first Executive Director and is the founder of Children’s Cause for Cancer Advocacy and the Mary McDowell Friends School.

“We are pleased and fortunate to have such a strong and diverse group of advisors in our inaugural slate,” said Jaworski. “The PAC will help provide thought leadership as CBTF redoubles our efforts to expand awareness of pediatric brain tumors, advance scientific research aimed at a cure, and provide best-in-class quality of life programs to survivors and families.”

About Children’s Brain Tumor Foundation

Established in 1988, Children’s Brain Tumor Foundation (CBTF) aims to improve the quality of life for pediatric brain tumor patients and their families through research, information, programs and advocacy. CBTF is the founding funder of the Children’s Brain Tumor Tissue Consortium and has provided over $10 million to the best doctors, researchers and institutions leading the charge toward the cure for childhood brain tumors and nearly $1 million for professional training and clinical fellowships in the field of pediatric neuro-oncology. CBTF is the only national organization to provide quality-of-life research and programs for all members of the family throughout the brain tumor continuum. CBTF has helped over 50,000 families through its Bereavement, Survivorship, Family 2 Family and Advocacy programs.

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