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Devin D. Thorpe

Devin Thorpe

Rare Genomics Institute (RG) President Jimmy Lin Appointed to Patient-Centered Outcomes Research Institute (PCORI) Advisory Panel on Patient Engagement

— Jimmy Lin will help leveraging RG global expertise to guide PCORI’s patient-centered research efforts —

Washington D.C., June 30, 2015 – Rare Genomics Institute (RG) today announced that Jimmy Lin, RG President, has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Patient Engagement.

Jimmy Lin will join other members of the panel in applying his experience and expertise to help PCORI refine and prioritize research funding priorities and ensure that the work PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers.

“Rare Genomics Institute fully supports the enormous work PCORI is doing to close the gaps in evidence to improve key health outcomes,” said Jimmy Lin, MD, PhD, MHS, President of the Rare Genomics Institute. “Appointment to the Advisory Panel on Patient Engagement is a great honor and an excellent opportunity for RG to offer our global expertise, technology and patient engagement experience to promote personalized approach to rare ailments through sophisticated genetic sequencing.”

PCORI is an independent, non-profit organization authorized by Congress to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions.

Dr. Lin was selected on the basis of his formidable track record, expertise, and ability to contribute to the panel’s tasks and responsibilities. Panel members represent a broad range of healthcare stakeholder groups and perspectives, including patients, family caregivers, clinicians, drug and device makers, and researchers, among others.

Jimmy Lin, MD, PhD, MHS, is a 2012 TED Fellow and Founder & President of Rare Genomics Institute, the world’s first platform to enable communities to leverage cutting-edge biotechnology to advance understanding of rare diseases. Previously, Dr. Lin was a medical school faculty member at the Washington University in St. Louis and. While at Johns Hopkins, he led the computational analysis of the first ever exome sequencing studies for any human disease. Dr. Lin has numerous publications in Science, Nature Genetics, Nature Biotechnology, and Cell and has been featured in Forbes, Bloomberg Businessweek, Wall Street Journal, Washington Post, BBC, TIME, CNN, and the Huffington Post.

More information about the Advisory Panel on Patient Engagement, including its scope of work and a list of all members, is available on the PCORI website: http://www.pcori.org/get-involved/join-advisory-panel/advisory-panel-patient-engagement

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