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Devin D. Thorpe

Devin Thorpe

Monthly Archives: May 2017

Majority of 26,000 Calls to The Leukemia & Lymphoma Society Reflect Patient Financial Stress Caused by Rising Cost of Cancer Care

Putting Patients First, World’s Leading Non‐Profit Fighting Blood Cancers Driven to Announce New Position and Policies on Cost of Cancer Care

Press Release – (Rye Brook, NY – May 2, 2017) – The rising cost of treatment and care for blood cancer patients has reached a boiling point, according to The Leukemia & Lymphoma Society (LLS), with an increasing number of patients foregoing their medications or reducing the dosage or frequency of their doctor‐prescribed treatments solely for cost reasons. In 2016, LLS’s free Information Resource Center received more than 26,000 calls from patients and families – the majority included concerns about financial stress and difficulties accessing treatment.

The cost of cancer care has been steadily rising and patients are bearing more of the financial burden, paying increasingly larger portions out of their own pockets for their care. These rising costs are found in every element of cancer care: hospitalizations, diagnostic testing, co‐pays and co‐insurance, and the exponentially‐increasing prices of specialty drugs. All indications suggest that these costs will only continue to escalate under present conditions. In fact, the U.S. will spend $158 – $173 billion each year on cancer care by 2020 – a 27 percent to 39 percent increase since 2010.

“One of the worst side effects of fighting cancer is the cost of care, and that situation is quickly deteriorating” said Louis J. DeGennaro, Ph.D., LLS president and CEO. “LLS is on the frontlines of the battle against blood cancers and we are alarmed by the stories that patients and their families are sharing with us about their struggles to access affordable, high‐quality and stable care. We can no longer just quietly advocate on behalf of the blood cancer community – we need to take bold action and call on all stakeholders in the cancer ecosystem to ensure that patients are not the only ones who are shouldering the rising cost of cancer care.”

LLS unveiled today a new public position statement and policy recommendations related to the cost of cancer care, grounded in the principle that patients must have guaranteed access to high‐quality, affordable and stable care. LLS is directly calling on every player in the healthcare system – from patient organizations, drug, device and diagnostic manufacturers, to insurers and pharmacy benefit managers, healthcare providers, hospitals, and state and federal governments – to put patients first by enacting new reforms and lowering overall costs and financial distress for cancer patients.

LLS called for the following specific action steps:

  • Patient Organizations should increase transparency in their relationships with for‐profit healthcare companies;
  • Prescription Drug Manufacturers should adopt innovative payment methodologies that reward positive patient outcomes;
  • Health Insurance Companies and Pharmacy Benefit Managers (PBMs) should direct a significant portion of the savings they derive from negotiated pharmaceutical product rebates directly to patients taking the covered medication;
  • Providers should incorporate cost discussions into treatment planning; and
  • Policymakers should require drug manufacturers to report to the U.S. Department of Health & Human Services (HHS) the initial list price for each medication offered on the market and significant changes in the list price over time.

For its part, LLS is committing to a series of actions to demonstrate transparency regarding its industry relationships and pledges to advocate forcefully for specific policies that guarantee access to stable and high‐quality care. Among the specific steps that it will take, LLS will publicly share the amount of funding it receives from industry as a percentage of total revenue on its website and in its annual report.

“Having cancer is hard enough, and worrying about the cost of the disease only makes the situation worse,” said DeGennaro. “We are unapologetically a ‘patients first’ organization and it’s time that everyone with a stake in cancer care, financial or otherwise, take responsibility for helping people manage this very stressful and complicated disease. Patients’ lives literally depend on it.”

About The Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society® (LLS) is the world’s largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

Founded in 1949 and headquartered in Rye Brook, NY, LLS has chapters throughout the United States and Canada. To learn more, visit www.LLS.org. Patients should contact the Information Resource Center at (800) 955‐4572, Monday through Friday, 9 a.m. to 9 p.m. ET.

Theatre Communications Group Announces New Round of Global Connections Program

With renewed support of $375,000 from The Andrew W. Mellon Foundation

Press Release – New York, NY – Theatre Communications Group (TCG), the national organization for theatre, is pleased to announce renewed and increased support of $375,000 from The Andrew W. Mellon Foundation for Round 6 of Global Connections. This program encourages reciprocity and cultural exchange through two programs: ON the ROAD grants to foster new relationships with international colleagues; and IN the LAB project development grants to further pre-existing international collaborations. Over its first five rounds, the Global Connections program has awarded $671,880 through 94 grants to artists and companies in 39 U.S. states to collaborate with their colleagues in 53 different countries.

“As we enter our sixth round of the Global Connections program, we’re witnessing the ongoing impact from our first five, from Kenyan flower growers continuing to create theatre across ethnic lines to ongoing collaborations across the U.S./Mexico border,” said Teresa Eyring, executive director, TCG. “Thanks to this renewed support from The Andrew W. Mellon Foundation, many more border-crossing connections will be made and deepened, promoting global citizenship during a time when it is greatly needed.”

In Round 6, ON the ROAD grants of up to $5,000 will foster new relationships for a broad range of U.S.-based theatres and individual theatre professionals to collaborate with their international colleagues. IN the LAB grants of $10,000 each will nurture pre-existing international collaborations by supporting residencies that either advance the research and development of a new collaborative project or explore elements leading up to a full production.

“More than anything, this is a program that brings working artists from different cultures and perspectives together and broadens the voice those artists have in their respective countries,” said Tom Lee, Global Connections: IN the LAB recipient. “In a time where we hear rhetoric about what divides us culturally and nationally, TCG and The Andrew W. Mellon Foundation are supporting artists who believe in a global approach to making work and to looking beyond our own assumptions.”

The first application cycle launches in May 2017 and the deadline for applications is September 13, 2017. The guidelines and applications will be published on the TCG website in the next month: http://www.tcg.org/Grants/GrantsAtAGlance/GlobalConnections/Description.aspx.

“Geographically unrestricted support for travel and project development has become increasingly rare,” said Kevin Bitterman, director of institutional advancement and partnerships, TCG. “In recent surveys, TCG has learned that the advantages of investing in this work are deep and wide-ranging, from providing audiences with new perspectives to promoting cultural and aesthetic diversity.”

“My work is built on radical borrowing. If we create art that draws on many different cultural, historical, aesthetic languages, the work will speak to many different people,” said Kaneza Schaal, former Global Connections: ON the ROAD recipient. “Through the support of TCG’s Global Connections program and my time in Kigali, I affirmed that my creative practice lives beyond national boundaries and is grounded in global histories of experimental performance.”

Building upon TCG’s core value of Global Citizenship, Round 6 of Global Connections will align with other TCG international activities to maximize impact. Those activities include the Global Theater Initiative (GTI), a partnership that combines the unique reach of TCG’s international programming with the Laboratory for Global Performance and Politics (the Lab) at Georgetown University’s experience in humanizing global politics through the power of performance. GTI strengthens, nurtures, and promotes global citizenship and international collaboration in the U.S. professional and educational theatre field through programs like World Theatre Day, international-themed convenings, and delegations of U.S. theatre people to international festivals. Learn more about TCG and GTI’s international activities here.

Founded in 1969, The Andrew W. Mellon Foundation endeavors to strengthen, promote, and, where necessary, defend the contributions of the humanities and the arts to human flourishing and to the well-being of diverse and democratic societies by supporting exemplary institutions of higher education and culture as they renew and provide access to an invaluable heritage of ambitious, path-breaking work. www.mellon.org.

For over 50 years, Theatre Communications Group (TCG), the national organization for U.S. theatre, has existed to strengthen, nurture and promote the professional not-for-profit theatre. TCG’s constituency has grown from a handful of groundbreaking theatres to nearly 700 member theatres and affiliate organizations and more than 12,000 individuals nationwide. TCG offers its members networking and knowledge-building opportunities through conferences, events, research and communications; awards grants, approximately $2 million per year, to theatre companies and individual artists; advocates on the federal level; and serves as the U.S. Center of the International Theatre Institute, connecting its constituents to the global theatre community. TCG is North America’s largest independent publisher of dramatic literature, with 14 Pulitzer Prizes for Best Play on the TCG booklist. It also publishes the award-winning American Theatre magazine and ARTSEARCH®, the essential source for a career in the arts. In all of its endeavors, TCG seeks to increase the organizational efficiency of its member theatres, cultivate and celebrate the artistic talent and achievements of the field and promote a larger public understanding of, and appreciation for, the theatre. www.tcg.org.

Dr. BJ Miller to Serve as Dream Foundation Honorary Medical Chair

Press Release – SANTA BARBARA, Calif., May 1, 2017 — Dream Foundation, the only national dream-granting organization for terminally-ill adults, today announced that Dr. BJ Miller, a world-renowned speaker and physician specializing in hospice and palliative care will serve as the organization’s Honorary Medical Chair. Dr. Miller currently treats patients with terminal illnesses at the University of California-San Francisco Medical Center and recently served as Executive Director of San Francisco’s Zen Hospice Project.

“Dr. Miller has a very real and genuine empathy for those who have been given a diagnosis they cannot control and has dedicated his life to helping people prepare for death,” said Dream Foundation’s Chief Executive Officer Kisa Heyer. “Dream Foundation joins Dr. Miller in the belief that dying is not about the disease but rather making the most out of the remaining days that life offers.”

As Honorary Medical Chair, Dr. Miller will provide guidance and support to the Dream Foundation team about the palliative care of our Dreamers, and allow Dream Foundation to continue focusing on improving the quality of life for the patients and families Dream Foundation is honored to serve.

“Death presents us all with the creative challenge of living the best life we can while we can, not just for ourselves but for each other, says Dr. Miller. “Dream Foundation proves this point and I’m thrilled and proud to be part of it.”

Dr. BJ Miller sees patients in the Symptom Management Service of the UCSF Helen Diller Family Comprehensive Cancer Center, one of the very first outpatient palliative care clinics in the US.

BJ Miller, a native of Chicago, studied art history as an undergraduate at Princeton University. He worked for several years for art and disability-rights nonprofit organizations before earning a medical degree at UCSF. He completed an internal medicine residency at Cottage Hospital in Santa Barbara, where he was chief resident, and a fellowship in Hospice and Palliative Medicine at Harvard Medical School, working at the Massachusetts General Hospital and Dana-Farber Cancer Institute. In his work, he connects art, spirituality and medicine in end-of-life care. Miller is an assistant clinical professor of medicine in the Division of General Internal Medicine.

Miller’s TED Talk, “What Really Matters at the End of Life,” has garnered over 5.5 million views to date and ranked among the Top 15 Most Viewed Talks of 2015.

About Dream Foundation:

Dream Foundation, the only national dream-granting organization for terminally-ill adults, fulfills final Dreams that provide inspiration, comfort and closure at the end of life. With the support of a nationwide network of volunteers, hospices, health care organizations and committed donors, Dream Foundation has given life to more than 25,000 final Dreams over the past two decades and has never turned down a qualified applicant. Dream Foundation does not receive any federal or state funding and relies solely on individual donations and corporate partnerships to fund its programs. The Foundation is proud to maintain Charity Navigator’s four-star rating—its highest—for sound fiscal management ensuring its donors and partners that their investment will be used wisely. For more information, please visit DreamFoundation.org.

GLG Launches Fourth Year Of Social Impact Fellowship With Call For Applications Announcement From Milken Institute Global Conference

Press Release – Los Angeles, California; May 1, 2017GLG (Gerson Lehrman Group, Inc.), the world’s leading membership for professional learning, today announced that applications for its fourth class of Social Impact Fellows would be accepted now through July 17, 2017. (The application is available here.) The GLG Social Impact Fellowship, which was extended from one to two years in 2016, gives curious and ambitious nonprofit and social enterprise leaders access to peer-to-peer learning from GLG’s membership of 500,000 experts and thought leaders, at no cost.

“Our mission is to transform the way the world’s top professionals share expertise through varied one-to-one learning opportunities,” said GLG CEO Alexander Saint-Amand. “Our Fellowship, now in its fourth year, serves some of the world’s best and brightest social entrepreneurs. We’re excited to build a new class of Fellows who will bring with them unique experiences and challenges and grow our community of leading social sector learners.”

GLG Director of Social Impact Jen Field announced the opening of applications in Los Angeles at the Milken Institute Global Conference, where GLG will host an event for social sector leaders and GLG Social Impact Fellows. In conjunction with the call for applications, GLG will release new videos with current and former GLG Social Impact Fellows discussing their organizations and how they’re creating impact across their various geographies and issues. The first video features 2015 Social Impact Fellow Rebecca Van Bergen, Founder and Executive Director of Nest. More videos will be released in the coming weeks.

“At GLG we are fortunate to be learning from the passions, drive, and commitment of each of our Fellows,” said Field. “And we know that the key to success is identifying leaders who share GLG’s commitment to the value of teaching and learning.”

GLG Social Impact Fellows are creative problem-solvers who have demonstrated that they are among the most promising and gifted social sector leaders. They join GLG’s community of leading investors, entrepreneurs, corporations, and consulting firms, who learn every day from academics, current and former C-suite executives, scientists, policy specialists, former public sector leaders, and other professionals. Fellows and their teams work collaboratively with GLG to leverage the breadth and depth of GLG’s membership to inform strategic decisions and increase impact. (Learn more about the Fellowship and past Fellows here.)

The competitive selection process is based on organizations’ missions and models and on applicants’ articulation of how GLG’s resources would help them increase efficacy and scale at key moments in their organizational growth. Past and current Fellows and their organizations tackle a range of social challenges around the world–from healthcare in Nepal to water sanitation in Bangladesh, from youth unemployment in Nigeria to disaster response in the U.S, and beyond.

Applicants must be the Founder, Executive Director, President, or CEO of a nonprofit or social enterprise with an innovative model creating demonstrable social change. Organizations must have a multi-year plan in place, be 2-10 years old, and fit within our budget criteria. Applicants must be eager to learn from the world’s leading professionals, from GLG, and from each other.

The application is available online at GLGSocialImpact.com/application. Applications will be accepted until July 17 and the 2017 Fellows will be announced in the fall.

About GLG / Gerson Lehrman Group

GLG is the world’s leading membership for professional learning. Business leaders, investors, consultants, social entrepreneurs, and other top professionals rely on GLG to learn in short- and long-term engagements from more than 500,000 members and other experts. Clients partner with GLG to address their most complex strategic challenges, make better business decisions, and advance their careers through conversations, mentorships, small group meetings, surveys, and other interactions—all within a rigorous compliance framework. Headquartered in New York City, GLG’s 1,300+ employees work from offices in 12 countries. For more information visit www.GLG.it.

About GLG Social Impact

GLG Social Impact is an initiative of GLG to advance learning and decision-making among distinguished nonprofit and social enterprise leaders. The GLG Social Impact Fellowship is our flagship program, providing learning resources to a select group of nonprofits and social enterprises, at no cost. Our clients include: leading foundations, impact funds, consultancies, nonprofits and social enterprises. To find out more, visit www.GLGSocialImpact.com.

Easter Seals-Goodwill Celebrates Goodwill® Industries Week, May 7-13

Press Release – The week of May 7-13, Utah Goodwill stores will join with more than 3,200 Goodwill stores across North America in celebrating National Goodwill Industries Week. It’s a time when stores focus on thanking customers for their support and helping the community better understand how clothing donations and purchases make it possible for Easter Seals-Goodwill to fulfill its mission.

According to Assistant Vice President of Goodwill operations, Lee Manwaring, Goodwill stores operate with the goal of providing job training and work experience opportunities within the stores and also financial support for the organization’s mission-focused services, which create opportunities for meaningful work for seniors and greater independence for children and young adults with disabilities and special needs.

Services like Peer Connections® which is a transition program offered in Salt Lake City and St. George. It is designed to help students ages 16-22 with significant social communication issues establish and enhance their relational skills, while exploring work and career activities. The students volunteer in agencies that include not only the Goodwill stores, but also places like The Leonardo Museum and Thanksgiving Point to name just a few. Last year, Easter Seals-Goodwill served 95 young adults in the Salt Lake and St. George area.

Another way our stores are celebrating the week, according to Chelle Fried, community relations officer at Easter Seals-Goodwill, is by showing special appreciation to Goodwill shoppers. Goodwill stores in Utah will be hosting a variety of sales and activities throughout the week, including drawings for $25 Goodwill gift cards and special discount shopping deals:

  • Sunday, May 7th: 25% off all new goods
  • Wednesday, May 10th: 50% off all new goods clearance
  • Saturday, May 13th: 50% off all donated merchandise

Goodwill stores in southern Idaho, Utah and Montana are part of Easter Seals-Goodwill Northern Rocky Mountain Inc., a non-profit human services organization that touches the lives of over 24,000 people annually through its 38 different programs in 40 locations across a four-state region. Its staff of nearly 1,000 professionals is dedicated to creating opportunities that change lives.

Recognizing Utah’s Fastest Growing Companies

Press Release – MountainWest Capital Network (MWCN) is now accepting applications for the 2017 MWCN Utah 100 Awards, and we are inviting your company to apply. This year is the 23rd anniversary of the Utah 100 Awards Event and we continue our tradition as the pre-eminent tribute to the fastest growing and most exciting companies in Utah. Our awards luncheon will be held on October 10, 2017 at the Grand America Hotel.

There are 3 categories: Fastest Growing, Top Revenue Growth and Emerging Elite. To qualify for consideration, a company must be a Utah-based, for-profit entity.

The Fastest Growing and Top Revenue Growth category companies must have been in business for, at least, the last five consecutive years (2012-2016) and must have had a minimum of $50,000 in total revenue in fiscal 2012. Winners will be selected and ranked based upon percentage increases in revenue during the five consecutive year measuring period.

Candidates for the Emerging Elite Awards are Utah-based, for-profit companies with less than five years but at least two years of operating history, and show great promise for future success. Winners will be selected by our Selection Committee based on financial data and other factors.

MWCN encourages all companies to apply regardless of their percentage growth rate. The percentage growth necessary to qualify varies from year to year, and if your company qualifies, it deserves to be recognized.

There is no cost to apply. All financial information submitted will be held confidential and utilized only by the Selection Committee. No financial information will be published or made publicly available. Companies selected for inclusion in the 2017 MWCN Utah 100 Awards Event will be notified by the end of August 2017.

To honor the winning MWCN Utah 100 companies, an awards event will be held on October 10, 2017 at the Grand America Hotel in Salt Lake City, with an exclusive winners and sponsors reception scheduled for the hour before the event. Winners are encouraged to share the excitement of winning by inviting company employees, customers and other guests to the awards event. The awards program will attract more than 1,200 attendees, who will include local business and government leaders and many media representatives. Winners will receive a MWCN Utah 100 Award plaque. A book listing all winners and their rankings will be provided to all attendees. Winners will also be recognized in local publications.

All applications must be submitted by June 30, 2017. Instructions for applying are available at www.mwcn.org, where you can apply online with further directions for submitting your completed application. Please note that there are two official application forms – the standard form for those companies applying for either the Fastest Growth or Top Revenue Growth category applications, and one for Emerging Elite category applicants. You may submit only one application; please submit the one that fits your situation. Questions regarding the MWCN Utah 100 Award Event should be directed to the MWCN Utah 100 hotline at (801) 966-1430 or email at cheri@mwcn.org.

Whether your company is selected as a MWCN Utah 100 winner or not, we encourage you to attend the awards event. Please RSVP your attendance online at www.mwcn.org. We look forward to your participation in the 2017 Utah 100 Program!

We also encourage you to consider membership in the MountainWest Capital Network, Utah’s leading investment and deal-flow organization. Membership information is available online at www.mwcn.org.

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